Sunday, November 29, 2009

An advance christmas gift for JAN

Dear Friends,
PLEASE HELP OUR FAMILY GIVE THE BEST CHRISTMAS GIFT FOR JAN CIRYL...
THE LIVER TRANSPLANT OPERATION. I am truly glad to inform you that MY SON JAN CIRYL TIBURCIO IS HAVING HIS LIVER TRANSPLANT OPERATION AT CHANG GUNG MEMORIAL HOSPITAL IN KAOHSIUNG, TAIWAN ON DECEMBER 3 AT LAST. The hospital transplant operation expenses were already settled with the help of a lot of people from the different government institutions, private organizations, private individuals and ABS-CBN/ DZMM PASADA 630's Ms Karen Davila and Sir Vic deleon Lima and you guys. Philippine Airlines Foundation gave us free tickets. Rotary Club International gave us free place to stay. BUT because JC was confined for almost two weeks at the Philippine Children Medical Center due to pneumonia and infection also had his dental rehabilitation/operation that is truly needed in preparation for the liver transplantation because worst teeth condition might lead to infection and bleeding during and after the operation. He was discharged yesterday with a very HUGE bill so we'll be going to Taiwan with only a small sum in our pockets. PLEASE HELP US IN WHICHEVER WAY POSSIBLE. EVEN IN KIND PLEASE. PASENSIYA NA PO KAYO...ALAM KO PONG NAGING BAHAGI NA KAYO NG BUHAY NI JAN CIRYL AT NG PAKIKIPAGLABAN NG PAMILYA NAMIN SA BILIARY ATRESIA. PLEASE PRAY ALSO FOR THE SUCCESS OF THE OPERATION. Thanks, take care and God bless! You may also reach us through our email address eloisatiburcio@yahoo.com You may contact us telephone numbers +639151184476 or +639398271616. For more information/updates, please visit the sites eloisatiburcio.multiply.com, jancirylsbattle-eloi.blogspot.com or caringbridge.org/visit/jancirylsbattle. You may also send your donation by depositing to any BANCO DE ORO branch. Any amount you may contribute may go a long way into helping JC and save him from dying. Please donate at any Banco de Oro- Malanday Mc Arthur Highway, Valenzuela City Account name:JAN CIRYL TIBURCIO Account number: 3870047067 God bless! Thanks a lot and take care.
PS. Sana maibahagi mo po ito sa ilang kaibigan at kamaganak diyan po na maaaring makibahagi sa aming pakikibaka sa sakit na ito. Marami pong bata na ang naisalba na ng transplant lalong lalo na po iyong natulungan ng mga kamag-anak at kaibigan. Patawarin ninyo po ako sa pang-aabala sa inyo.
PLEASE PASS THIS MESSAGE...

Truly begging you,
Mrs. Eloisa Tiburcio
112 Isla, Valenzuela City, Philippines 1444

No comments:

MY YOUNGEST SON NEEDS YOUR HELP...PLEASE

Good day friends...My youngest son Jan Ciryl Tiburcio has a very rare liver ailment called "biliary atresia"...he needs liver transplant in order to live. It is a condition where the liver does not have enough bile ducts and as a result the bile builds up within and destroying his liver. You may visit the website of Lift-Babies Foundation Inc-Philippines for more information about the disease. Pediatric liver transplants can be done at the Chang Gung Memorial Hospital in Kaohsiung Taiwan, at the Glen Eagles Hospital in Singapore, or at the Queen Mary Hospital in HongKong at a cost ranging from 4 to 7 million pesos. We can not afford such huge amounts that is why we appeal for your compassion. Please help us raise money for the transplant. Any amount you can contribute will help ensure my son's survival. I am begging all of you.

Eloisa
Mother of JC

Biliary Atresia (BA)

(excerpts from American Liver Foundation website)

Explore this section to learn more about biliary atresia, including a description of the disease and how it's diagnosed.

What is biliary atresia?

Biliary atresia is a disease of the bile ducts that affects only infants. Bile is a digestive liquid that is made in the liver. It travels through the bile ducts to the small intestine, where it helps digest fats.

In biliary atresia, the bile ducts become inflamed and blocked soon after birth. This causes bile to remain in the liver, where it starts to destroy liver cells rapidly and cause cirrhosis, or scarring of the liver.

What causes biliary atresia?

The cause of this disease is not known. In some infants, the condition is most likely congenital, meaning present from birth. About one in 10 babies with biliary atresia have other congenital defects. Some research indicates that an early viral infection may be linked to biliary atresia.

Scientists do know that biliary atresia is not hereditary; parents do not pass it on to their child. It is also not contagious, and it is not preventable. It is also not caused by anything an expectant mother did or did not do.

What are the symptoms of biliary atresia?

Symptoms of biliary atresia usually appear between two and six weeks after birth. The baby will appear jaundiced, with yellowing of the skin and whites of the eyes. The liver may harden and the abdomen may become swollen. Stools appear pale grey and the urine may appear dark. Some babies may develop intense itching.

How is biliary atresia diagnosed?

Since other conditions lead to symptoms similar to those of biliary atresia, doctors must perform many tests before a conclusive diagnosis can be made. These tests may include blood and liver tests, an ultrasound examination, X-rays and a liver biopsy, in which a small amount of liver tissue is removed with a needle for examination in a laboratory.

How is biliary atresia treated?

Unfortunately, there is no cure for biliary atresia. The only treatment is a surgical procedure in which the blocked bile ducts outside the liver are replaced with a length of the baby’s own intestine, which acts as a new duct. This surgery is called the Kasai procedure after Dr. Morio Kasai, the Japanese surgeon who developed it.

The aim of the Kasai procedure is to allow drainage of bile from the liver into the intestine through the new duct. The operation is completely or partially successful about 80 percent of the time if performed early (before 3 months of age). In babies who respond well, jaundice and other symptoms usually disappear after several weeks.

In cases where the Kasai procedure does not work, the problem often lies in the fact that blocked bile ducts are “intrahepatic,” or inside the liver, as well as extrahepatic, or outside the liver. No procedure, except for liver transplant, has been developed to replace blocked intrahepatic ducts.

The Kasai procedure is most successful in babies younger than 3-months-old, so early diagnosis is important.

If the Kasai procedure is not successful, the only other option is a liver transplant. However, a suitable donor organ must be found quickly, before damage to the liver from the backed-up bile becomes deadly.

What happens after surgery?

The aim of treatment after surgery is to encourage normal growth and development. If bile flow is good, the child is given a regular diet. If tests show that bile flow is reduced, a low-fat diet and vitamin supplements will be required, since the absorption of fats and vitamins is impaired.

What is the outlook for babies with biliary atresia?

Without successful treatment, few children with biliary atresia live beyond age two. In some cases, where the Kasai procedure is completely successful, the child may recover and live a normal life. However, in most cases, even when surgery is successful, patients will suffer gradual damage to the liver. These children will need specialized medical care throughout their lives, and many will ultimately need a liver transplant.

Is a liver transplant the solution?

In children with biliary atresia, a liver transplant is generally not attempted unless the Kasai procedure has been tried. In cases where that operation is unsuccessful, the child may become a candidate for a liver transplant. Success depends on the timely availability of a matching donor liver. Fortunately, survival rates for liver transplant recipients have increased dramatically with improved surgical techniques and the development of drugs that help overcome the problem of organ rejection.

What can the family do?

Watching a newborn suffer from biliary atresia is a heart-breaking experience. Parents are frustrated because so little is known about the disease and treatment options are so limited. Many parents find comfort in support groups because it allows them to talk to other parents in similar situations. Finding out that others feel the way they do, and learning how other parents are coping with a child’s disease, is often a great comfort.

Blessings Beyond Measure...God Saved Jan!

Sunday, November 29, 2009

An advance christmas gift for JAN

No comments:

Post a Comment

Coping with Biliary Atresia

Jan's other sites...

Translate

My Precious

Total Pageviews

Popular Posts